

JHH in the News!





Check below to see what's new at JHH!
At Jamal's Helping Hands we strive to provide content that is meaningful, purposeful, heartfelt, and encouraging to our very special community! We understand that everyone has bustling schedules and you want content on demand. If you missed a webinar or just want the slides, you can find it here. Have an idea for a topic you like us to cover? Contact us today and let us know, we love to hear from you!
Listen to our Podcast!
Join our Founder, Valeria McConnell as she hosts our podcast EveryDay Rare. Check out our exciting and informative episodes on Spotify, Podchaser, Podcast Addict, or Podcast Index!
Remember to always take the R.A.R.E. approach!
R- Research organizations, therapies, and trials.
A- Align with the ones that suit you.
R- Register for research.
E- Educate yourself, caregivers, physicians, and others!

Our Resources
Rare Action Network Advocacy
3 Keys to Care Journey
We kicked off the New Year with this short informative webinar to assist you in optimizing your doctor's visits.
July Caregiver Check-in
Download our Coping Skills Guide PDF from our July Caregiver Check-in!