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Check Here for Our Latest & Greatest!

At Jamal's Helping Hands we strive to provide content that is meaningful, purposeful, heartfelt, and encouraging to our very special community! We understand that everyone has bustling schedules and you want content on demand. If you missed a webinar or just want the slides, you can find it here. Have an idea for a topic you like us to cover? Contact us today and let us know, we love to hear from you! 

Download our Coping Skills Guide PDF from our July Caregiver Check in!

       We Launched Our Podcast! 

Join our Founder, Valeria McConnell as she hosts our podcast EveryDay Rare. Check  out our exciting and informative episodes on Spotify, Podchaser, Podcast Addict, or Podcast Index! 

Remember to always take the R.A.R.E. approach!

R- Research organizations, therapies and trials. 

AAlign with the ones that suit you. 

R- Register for research.

      IAMRARE  CoRDS   Orphanet 

EEducate yourself, caregivers,  physicians, and others!