ABOUT US

Our Mission

Jamal's Helping Hands provides client-focused support to patients and their families dealing with a chronic illness. 

We help these patients and families navigate the many and difficult travails of today's healthcare industry.  Our services include various resources and educational information to help you better manage your loved-one's healthcare. 

It is our goal to enhance the quality of our client's lives and to make things easier for their families. 

 PROVIDING HOPE & HELP 
 TO YOUR HEALTH CARE 
Jamal's Story
McKinley
"Jamal"
Thomas

Jamal was diagnosed with Neurofibromatosis 1 (NF1), also known as Von Recklinghausen's disease, at the age of 9. He underwent 7 surgeries to remove tumors throughout his body, which threaten normal activities of his vital organs and motor skills. 

Despite all of his physical limitations and the mental stress brought on by NF1, Jamal insisted on living a normal life and pursuing his education.  After high school, he furthered his quest for learning by obtaining his Associates of Arts from Anne Arundel Community College in Maryland.  He then pursued and obtained a Bachelors of Science in Social Work at the Alabama A&M in Huntsville, Alabama.  He made such an impact at A&M that the school established a scholarship in honor of him.  Ultimately, Jamal achieved one of his biggest dreams by graduating as a Gamecock from the University of South Carolina with a Masters in Social Work with a certificate in Drug Addiction Studies. 

In November of 2013, Jamal began to experience an unusual cough, which was misdiagnosed as an upper respiratory infection.  In May of 2014, we unfortunately received the nightmarish news that Jamal had a Malignant Peripheral Nerve Sheath tumor located between his esophagus and aorta, which was a result of NF1. 

After treatment at Johns Hopkins Medical Center and a valiant fight against NF1 and cancer, he was rendered to a wheelchair and given just weeks to live in October 2016.  But Jamal did not lose his faith as he maintained that God has the final say and he continued to fight until his passing on March 28, 2017 at the age of 31. 

NF1, while unknown to many, God sent Jamal to be his champion in the fight against this tremendous disease.

Rare Diseases

1 in 10

PEOPLE SUFFER FROM A RARE DISEASE

66%

OF PEOPLE WITH RARE DISEASES ARE CHILDREN

30%

WILL NOT SEE THEIR 50TH BIRTHDAY

FACTS ABOUT RARE DISEASES...

 

Rare diseases affects a small percentage of the population. 

Rare diseases often lacks a market large enough to gain support and resources for discovering treatments for it. 

Most rare diseases are genetic, and therefore are present throughout the person's entire life.

 

Rare diseases impact more people than aids and cancer combined.

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