Frequently Asked Questions

  • Jamal’s Helping Hands is a nonprofit organization dedicated to supporting individuals and families affected by rare diseases through advocacy, education, and community outreach.

  • JHH was founded to address the unique challenges faced by those living with rare diseases and to ensure no family feels alone in their journey.

  • We serve individuals, caregivers, and families impacted by rare diseases, as well as the broader community through awareness initiatives.

  • JHH provides community events, educational resources, advocacy support, and initiatives like the Run, Walk & Roll and awareness campaigns.

  • You can submit a request through our website, and our team will review and respond with available resources and support options.

  • You can contact us through our website or attend one of our events to connect with resources and support networks.

  • While we highlight conditions like Neurofibromatosis, we advocate for and support individuals across the rare disease spectrum.

  • You can sign up on our website or contact us directly to learn about volunteer opportunities for events and ongoing programs.

  • Yes! We collaborate with community partners, sponsors, and organizations to expand our impact.

  • Donations can be made online, through event contributions, or by texting “Navigating Rare” to 44321.

  • Yes, Jamal’s Helping Hands is a registered nonprofit, and donations are tax-deductible to the extent allowed by law.

  • Funds support advocacy efforts, community events, educational resources, and direct support initiatives for families.

  • We promote awareness through community events, partnerships, educational outreach, and storytelling.

  • Follow us on social media, share our content, attend events, and invite others to learn about rare diseases.

  • You can reach us through our website contact form, email, or social media platforms.

  • Subscribe to our newsletter and follow us on social media for updates, events, and opportunities.